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According to Computerworld (This article and its images were originally posted on Computerworld September 6, 2018 at 07:09AM.)
Most people don’t know it but there is a multi-billion dollar industry that collects healthcare information, strips it of basic personal identifiers such as name, address and Social Security Number, and then sells it off to researchers, drug developers, marketers and others.
Medical informatics companies, such as Iqvia (IMS Health), Optum, and Symphony Health reap the profits of selling the healthcare data while the people from whom it’s collected have no control over how it’s used. Nor do they get any compensation for it.
Start-up Hu-manity.co has partnered with IBM to develop an electronic ledger that gives consumers the cryptographic key to grant to their personal data, even allowing patients or others to control the specific purpose for which it’s used, while also allowing them to eventually profit from it.
The new Global Consent Ledger will initially begin with healthcare data from U.S. residents and provide a digital data trail stored on the IBM Blockchain Platform, which uses the Hyperledger Fabric specification.
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